Medical Gaslighting and Lyme Disease: The Patient Experience

Medical Gaslighting and Lyme Disease: The Patient Experience

Medical Gaslighting and Lyme Disease: The Patient Experience

Before I introduce this newly released study, I’m going to share a few facts about Lyme Disease.

 

  • According to the CDC, approximately 500,000 people are diagnosed with Lyme Disease each Year.
  • The BMJ has concluded that more than 14% of the world’s population is infected with Lyme Disease.
  • John Hopkins University reports that Lyme Disease exists in all 50 states.
  • The EPA uses Lyme Disease statistics as a key climate change indicator.


These are just a few of the shocking statistics regarding the prevalence of Lyme Disease yet patients are still being marginalized and dismissed. This badly needed study details the types of gaslighting techniques that people with Lyme Disease are routinely subjected to. This happens even with the exact evidence the CDC requires for a “positive” result.


90% of the study participants were diagnosed with a blood test, however this information did not influence whether or not the patient was believed.

Many respondents reported presenting with a “bullseye” or erythema migrans rash only to be discounted and told that Chronic Lyme Disease simply does not exist.


Even with the CDC’s surveillance results Lyme Disease is still considered a “contested disease” opening the door for questioning of it’s very existence.

If you or a loved one have experienced medical gaslighting with Lyme Disease, you know how traumatic the dismissal, invalidation and marginalization can be. Please know you are not alone. There is a large community of practitioners, scientists, researchers, patient advocates, etc. who will never stop trying to change this systemic problem. A huge thank you to Dr. Todd Maderis for sharing this important study. Awareness is crucial.


https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10778834/

By Amy Fein February 18, 2026
When Your Nervous System Learns To Scan For Danger If you grew up with chaos, criticism or instability, it makes sense that you feel “on guard” all the time. Your brain did exactly what it was supposed to do. It learned how to keep you safe in a world that didn’t feel safe. As a kid, were you constantly reading the room? ▪️Is Mom in a bad mood? ▪️Did Dad sound annoyed? ▪️Did I say the wrong thing? In that kind of environment, your nervous system is trained to scan for threat instead of possibility . The brain’s threat systems learn to stay on high alert, always looking for what might go wrong next. Over time, that “watch your every move” environment doesn’t just live outside of you anymore. It becomes an internal autopilot voice that keeps you hyper aware of perceived mistakes, tone, facial expressions and tiny energy shifts around you. That internal voice is active and hypervigilant even when you are safe. When criticism or unpredictability were your norm, your brain adapted. It linked being loved and feeling safe with avoidant behaviors that lessened the chances of feeling stressed or unsafe. Examples of avoidant behaviors include, ▪️Getting it right the first time. ▪️Anticipating other people’s needs. ▪️Minimizing your feelings. ▪️Staying small and non disruptive Eventually hypervigilance gradually becomes your base state. You don’t need a critical parent in the room anymore. You carry that voice unconsciously inside. You might notice things like, ▪️Ruminating and replaying conversations in your head. Cringing at “small mistakes” ▪️You assume you are in trouble when someone is quiet. ▪️You feel like you’re “too much” or “not enough”, often at the same time. None of this means you’re broken. It means that your brain learned a protective survival strategy that outlived the environment it was built for. Where neuroplasticity comes in. Your brain is changeable. Neuroplasticity is the brain’s ability to form new pathways and weaken old ones. What your brain learned from chaos and criticism, it can unlearn in safety and compassion. Hypervigilance and harsh self criticism are not fixed personality traits. They are habits in your nervous system. Habits can be retrained with small, repeated experiences of safety. What’s the first step? Notice patterns. The first step in retraining your brain is awareness. Just neutral, curious awareness. Instead of “what’s wrong with me”, try “This is my old survival pattern showing up. My brain is trying to protect me the way it learned in childhood”. Tiny shifts matter. When you see hypervigilance as a survival code, and not a character flaw, you reduce shame and negative thought loops which keeps the threat system switched on. Repeated messages of safety give your brain new data. When you notice these hypervigilant thoughts, say to yourself, “This is my nervous system trying to keep me safe. Thank you but we are not in danger right now”. Once you start to notice these patterns, and the frequency of these negative thought loops you begin to really understand that your brain learned to pair certain cues with danger. Neuroplasticity work means gently pairing those old cues with new experiences of safety. You’re teaching your nervous system, “we noticed that cue, but we don’t have to launch into full alarm anymore”. Over time, your brain starts updating its prediction from “danger is guaranteed” to “this might be uncomfortable but I am safe in this moment”. Every time you catch the old “script” and offer a new one, you strengthen a different pathway. Repetition is more important than perfection. T Want support with this process? If this resonates with you, if you’re always on edge, scanning for rejection, replaying conversations, I want you to know, nothing about this makes you weak. It means that your brain did its best in a hard environment and now it deserves the chance to learn something new. This is the work. The healing. The great unlearning. When doing this work, I help people with: ▪️Understanding their “survival codes” like hypervigilance and self criticism. ▪️Learning practical, evidence backed ways to calm the nervous system. ▪️Using neuroplasticity tools to build new patterns of safety, self trust and possibility. You don’t have to keep living as if you’re one wrong move away from losing everything. Your brain learned that once but with the right support your brain can learn something much kinder, gentler, and open to possibility.
By Amy Fein October 6, 2025
Letting Go Of Old Thought Patterns Is Possible Thanks To Neuroplasticity